Last reply 1 week ago
Sleep Sleep Sleep 💤💤💤

I’ve been focused on improving my sleep health and I’m looking for treatments, devices, medicine and/or solutions to help falling asleep. Some of the things I am using or tried have been:
– Sleep Hygien schedule 10pm -7am everyday
– No Alcohol
– No Caffeine
– CBD & marijuana
– Meditation
– Warm shower
– Metrodome 54bpm
– Smart Watch
– Essential Oils
– Reading
– Listening to stories
– Writing to do lists
– Listening to soft music
– sleeping on cooling devices
– ear plugs

Anything that has worked for you is a welcome suggestion. 🙏🏼❤️

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1 week ago

I take magnesium tablets and the spray at night to help me sleep also find if I eat no less than 3 hours before I go to bed i sleep much better for me cannabis is the best thing at night

1 week ago

@paul_freeman , with all that going on, when do you have time to sleep? 🤣🤣🤣

1 week ago

@paul_freeman What a great list of things to try out!
One which works for me is doing an A – Z in my mind. You choose any topic or theme and simply find a word for each letter. I have no idea how it works but I rarely get beyond ‘F’ before conking out. Last night it was DMD related: Avonex – Beta-Interferon – Copaxone – Drug – zzzzzz, the other day it was rivers and related words so Avon – Bank – Confluence – zzz. Topics I’ve chosen range from mindfulness (Acceptance – Breath – Calm – zzz) and colours to weather, holidays etc.

So a strange one but worth a try? 🙂

1 week ago

It is such a common challenge to us and I have brought it up at many of my neuro appointments. It is especially an issue right after my Ocrevus infusions which may be somewhat to the Sol Medrol you are dosed up on. So they will reduce that next time.

Finally this week in my Neuro appointment he took up sleep as something that should be looked into (after about 4 years of my reporting it as an issue) and wants me to go to a sleep clinic. Not sure when I can fit this in as I am sure that when I go to a different environment to try to sleep that it will be an epic fail ;-0 Often when I try to sleep at a hotel I get no sleep at all.

At home I do all the good sleep hygiene things (going to bed at 9:30) but very often end up going to the couch to read a book at 10 and after about 20 minutes pretty much collapse and sleep as I’ve moved my mind to a fictional place and it lets go. BUT…only for 2 hours and I’m back awake. Go to the bathroom, stretch a bit and then I can usually get back to sleep…for two hours…repeat (transitioning back to bed)…then hopefully get back to sleep until at least 5AM. Then that is about it- I don’t think I usually get 7 hours and this was documented by the wrist device I got to track my sleep and upload it to a program as I had a hard time believing it myself.

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