Last reply 2 weeks ago
Mini rant

So I met up with a friend yesterday for the first time since dx and she wanted to know what my MS was like. As it’s mostly silent right now I said that apart from very numb toes and sometimes feeling like I’m walking on gravel it was OK. Her response was to exclaim that she had numb toes too. She then went on to tell me at length about her cousin who’s working on a trial and perhaps I could take the drug on trial… sigh. If I’m being generous I’d think she was only trying to be sympathetic but I feel really low about it today.

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bullman
2 weeks ago

@henrietta Rant away. After dx, I told colleagues I had MS. A colleague said ‘I once had MS’. I ranted.


henrietta
2 weeks ago

@bullman priceless 😂 thank you, you’ve made me smile for the first time today


desn
2 weeks ago

@henrietta great! Im sure she meant well ☺️ I talk very little to friend and colleagues about my MS these days… I tend to say ‘im fine a lot’ people dont understand things they cant see…. if every who asked me ended up getting a full list of my oddities on a daily basis id have no friends 😂😂 so the all het the same answer… im fine…..


henrietta
2 weeks ago

@desn yep I think that’ll be my plan from now on – just say “I’m fine” to anyone who hasn’t got MS. Like someone wisely said on here – you have to have MS to get MS


desn
2 weeks ago

@henrietta thats so very very true 😂😂😂


ladylaura
2 weeks ago

@ Henrietta. Over the years I’ve realised than people do mean well, but because of ignorance to this illness, say the wrong things. I’ve had to educate family, friends & colleagues to try an understand but I still hear comments that get me down!


henrietta
2 weeks ago

@ladylaura she did mean well but is also the sort of person who makes absolutely everything about her… usually don’t mind but wasn’t in the mood this weekend! I guess I’ll get used to it 😉

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