Last reply 2 months ago
Looking for advise about vitamin d3 1000

Hi all,
Hope your doing well. I’ve not yet been diagnosed but waiting on mri results Etc. I’ve looked up vitamin d3 and I’ve now got them I’ve order 1000iu. Am a little worried that it might be to high. I eat really healthy diet. Lots of green veg. Fruit. I don’t have fatigue. I love for some feed back on taking these supplements. I know your all not doctors just looking for some advise before I take them many thanks 😍😍

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clare80
2 months ago

Hi @flowers71 that is the vitamin D dose recommended to me when I was diagnosed. It is high. I queried it more recently to check it was really correct and/or still up to date and MS consultant confirmed. I still try to get plenty of sunshine too!


Anonymous
2 months ago

Thankyou for your reply so you feel it would be okay? I really should have ordered a low strength. It’s not easy is it. Xx


clare80
2 months ago

Sorry, scrap that @flowers71 what I’m taking works out as 5,000 iu. Sorry there are different ways of measuring. So I’d say fine with what you are taking and then when you see the doctor you cam check in and get advice tailored properly for you.


Anonymous
2 months ago

clare80 thankyou I’ll take one and see how I go. Hope your well stay safe. And bless you for you relies 😘😘


dominics
2 months ago

@flowers71 – my memory is hazy but I think one of the better studies (I came out of Toronto) said that a level of 4300iu daily was the min required. I take 10000iu once every other day. As the standards in over the counter preparations are so variable I opted for a prescription (exactly the same stuff but been through far more rigorous quality control in order to be prescribable). As it is v hard to hurt yourself with it and that it is a chronic med my doc gives me 4 monthly prescriptions. It is cheaper too and I have peace of mind then.

Should you wish to go down this route then the brand on the Doctors system (usually EMIS) and one they can prescribe without getting it in the ear from the Prescribing Advisor at the Clinical Commissioning Group (CCG) is called Sun-vit (Cholocalciferol – the fancy name for D3) 10000iu (International Units is the iu bit).

D3 can leach calcium from the bones. Not always but worth asking after a year to have a dexoscan to measure bone density to avoid brittle bones.

Do not be surprised to run into flak from some medics, especially GPs. If you read the last sentence of the abstract (first para) of this https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5990512/ you’ll see that, technically speaking, more research is required.

Anecdotally, many MS specialist neurologists will admit to taking high dose vitamin D3. A quick hands-up in a recent event generated c. 2/3 of neuros saying they did.


Anonymous
2 months ago

@dominics thankyou


shari
2 months ago

My husband take 7000ui.


itsmewithms
2 months ago

4000-5000 per day or more according to Dr Boster and have it tested to keep between 50 and 100. I’m having my level tested with my next infusion (Ocrevus) pre-test to see if is high enough-


rel12
2 months ago

Hi @flowers71 !

You are off to a good start. Always speak with your doctor on your levels based on the blood work that was done. When I was diagnosed 2 years ago, I was asked to take 5,000ius. I have been taking my supplements daily & just received a letter from my neuro that my D3 levels are really good! Keep doing what you have to do 🙂


Anonymous
2 months ago

@rel12 thankyou 😘😘xx


Anonymous
2 months ago

@itsmewithms
Thankyou. I’ve watched arron boster. He’s amazing thankyou


mark_taylor
2 months ago

It’s not so much about the amount you take (I take on average 3000 IUs a day) but getting a regular 25-hydroxy vitamin D blood test to make sure you are at the right level (or in the right range). I get one or two tests a year and adjust accordingly.

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