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supermum1983
2 months ago

Have you not a friend to meet fot a chat??


vixen
2 months ago

Hello @jayjay10, oh that makes me a little sad! How are you spending your days at the moment, and how is your health in general? I always find that music fixes things when I’m feeling down in the dumps. Has something in particular happened? Keep your chin up, you have lots of virtual friends here x


jayjay10
2 months ago

@supermum1983

Most have disappeared out of my life due to my neglecting ways, I just don’t keep up with them like I use to.


jayjay10
2 months ago

@vixen

I often spend my days locked away in my room, I do listen to music but it doesn’t seem to be helping my mindset as too many negatives control my mind. Nothing in particular has happened to cause my sudden change of thoughts, its a continuation of being alone and solo in this world. This place really does produce smiles out of me as I know that there are so many people here that are willing to help and give their support.

Thank you for that comment, Vixen. It truly meant a lot to me.

Regards,

Jay.


vixen
2 months ago

@jayjay10, I have the advantage of being ‘older’ and I have learned to think outside the box. It can take immense effort, and is not always pleasant. But there’s always a way to cut through the crap, and look at yourself from a totally different angle. You are clearly a deep thinker. So you need to find a way to channel yourself and your thoughts in a new direction. Do you know what, I am very fortunate, I am happily married to a brilliant bloke, I have wonderful family. But sometimes I sit and think, my God, I am alone in this battle, it’s just me and this bloody condition, and all the love in the world can’t change that. So I understand how you feel. All through life, you go in and out of phases. You will find a way out of this one soon. You are young and need to make your life your own and live it to the fullest, whatever that takes. Hope you have a good weekend x


miniaturedisasters
2 months ago

Sorry to hear that Jay. Sometimes the longer you’ve been feeling isolated for, the harder it is to reach out to old or new friends. I’ve been there and had to give myself a little push to pick up the phone and contact someone, or to get out of my comfort zone and put myself in a situation where I’m meeting new people. It’s never as scary as I imagine beforehand. 🙂

I like the description on this page of loneliness being like hunger.

https://www.mind.org.uk/information-support/tips-for-everyday-living/loneliness/#.XNX0BpDTUql

Take care and do what feels good for you.

K


jamoranto
2 months ago

@jayjay10

Have a Chess game with me to keep your brain movin. SocialChess
@jamoranto


chezy17
2 months ago

I’m probably gonna sound harsh but get up and get out! Locked in your room isn’t gonna help, yes you’ve got ms, yes it’s shitty but it could be worse right?! Maybe your friends don’t know how to talk, but maybe they need to understand but they can’t understand why you’re hiding and locked away. Ms is not a death sentence, maybe it’s about overcoming the mental block, have ya pity party but bloody get up the next day…you’re young so bloody embrace it!

Sorry I’m not the pity party type, but life is too bloody short 😉


supermum1983
2 months ago

I agree with @chezy17.life is too short and its a big world out there. Can you go to any meet ups?

I watched my 600lb life one guy (Sean) had to lie on a mattress in the back of a van just to get to hospital. He wasnt living his life he was confined to his bed pretty much. He hired a carer to take him food shopping he was so happy just to be out of the house!!

How is your mobilty?x


dominics
2 months ago

@chezy17 has a point. The single biggest step is getting out. Go for a walk. Smile at people. Rely – Mast smile back, some look stunned so it is good to know you can make someone else happy.

Life is too goddam short and, sadly, few people will keep stepping in. Cruel to be kind remarks.

You make yourself happy or you grind yourself down. Ultimately, you choose.

Illegitimi non carborundum


jayjay10
2 months ago

@vixen

I have practically screenshot that comment that I just read with my eyes, each word spoke to me in ways I never thought was possible. I have literally absorbed that whole comment and switched off the negativity that has been coursing through my veins. I am so happy to hear that you have a loving family and that you have people around you to help manage whatever problems that may come your way.

You have given me a new way of thinking, thanks you so much for the support and help.

All the best,

Jay x


jayjay10
2 months ago

@miniaturedisasters

Yeah, being isolated for a long time is no help, that said, I am starting to receive the encouragement and support from the people here that are willing to give their advice and self experience of their lives. I have had too many situations of putting myself into a comfort zone and making it become my safe haven to completely escape from the world. I am now going to be looking up and enjoying each day as it comes.

Thank you for your comment and the link which you have provided, very much appreciated.

All the best,

Jay x


jayjay10
2 months ago

@jamoranto

Haha… I accept your challenge, I sure hope I last longer than 2 minutes.

All the best,

Jay x


jayjay10
2 months ago

Gosh, that sounded rather wrong. Time to forget the last part of that comment haha!


jayjay10
2 months ago

@chezy17

I am now starting to gain a different outlook on life, I have been given words of wisdom and inspiration which is making me see things more clearly. I am not going to let MS define who I am, I will put a status on my own life and create my own situations.

Exactly, life is too short, so I am going to go out there and embrace whatever comes my way.

Thank you so much for the comment and motivational support.

All the best,

Jay x


jayjay10
2 months ago

@supermum1983

I am signed up to receiving emails regarding MS meetups, I often get a fairly local one in Manchester, which is good as I am from Liverpool, Merseyside.

I wish the best for Sean, things have obviously become mentally draining and suffocating for him.

My mobility is fairly limited as I now use a walking stick, I have to locate destinations of rest due to my legs succumbed to strain and aches.

All the best,

Jay x


jayjay10
2 months ago

@dominics

I have now been given a new outlook on life, it’s amazing how a little chat can make perspectives appear differently from what they once were.

Thank you for your support and help.

All the best,

Jay x


dominics
2 months ago

@jayjay10 – my pleasure. For liger – read 1/2 – 1 mile walks, I use twin walking poles – £15 from eBay – instead of my cane. I can pull off not seeming pissed, which is a big plus as I try never to drink before 6pm 🙂

Also, in another move to control that which am able to, in the form of making my own cane from a carbon fibre tube and a handle and a foot. Entire thing will be less than £35 and carbon bling, which usually sells for £70+ If im gonna have canr it is going to be my cane!


chezy17
2 months ago

@jayjay10 Happy to hear we’ve helped you, life is too short to wonder about the if, buts and maybes. There’s a saying that you attract back what you give so happy people give off happy vibes which will attract happy people to you, at least that’s the theory which I’m currently testing lol! I smile at everyone I pass, a smile could make someone’s day, pay it forward right 😊?!


rmdaniels
2 months ago

@jayjay10
What a great group of folks here! I thought about you this weekend & I’m hoping you’ve made new friends to reach out to! I loved what you said, @chezy17! I find my troubles shrink when I look for ways to be cheerful to others! ❤️❤️❤️


jayjay10
2 months ago

Hey guys,

I honestly do get the feeling of a loving family each and every time I come here, such loving and caring people that are always willing to help and share to others no matter the circumstances, whether it’s to laugh, listen, or even lean on to. I truly feel at home when I come here.

Love you guys!

Jay x


rae87
2 months ago

Massive hugs! Sorry you feel this way. I thought I’d lost my friends when I was diagnosed. Truth is I learned who the real ones are. Illness really weeds out the weak friendship. I’m closer now to some amazing people and Ive made some amazing friends. What kind of things do you enjoy doing?


rogersouthall
2 months ago

Jayjay, I love some of these comments and as we all know, each and everyone of us have down days, thank God for this site and the work ShiftMS do. That said, you mate are having an acceptable down, I write my monthly blog and whilst writing it I think of life and times that have now past and look at what is before me, and although it may be lacking, I will never run a marathon, win Strictly Come Dancing or sweep a gorgeous girl off her feet (that last remark has nothing to do with MS it is to do with too many cakes ) but there is a lot to look forward to, I wish I had found this site ages ago.
http://www.wholesorts.com try and read from the beginning as it will show down times along with hope and happiness also my contact details are listed, stay well my friend


jayjay10
2 months ago

@rae87

I am so happy to hear that you have people around you that you can rely on, the fact that you have some amazing friends is a delight to my eyes. You are right, at first it is a bit of an waiting game as to see which people are with you and the ones that turn their back on you. Once again, I am happy to hear that you have friends that you can trust with an unbreakable bond.

I spend a lot of time with my nieces and nephews, they are there for me when my smile tilts upside down. They are a major part of my life. How about you, what things do you enjoy doing?

Regards,

Jay x


jayjay10
2 months ago

@rogersouthall

This place is quite simply incredible, they pick you up when you are down, we get pulled out of our darkest of moments and bring light with a blushing smile. I don’t honestly know what I would do without you guys, loving family. I love to write poetry but I am stunned into silence when I come here, I can’t put into words what I have gained from this place, indescribable would be something I can say but I feel that my compliments aren’t worthy of how miraculous these feelings can be.

Hey now, you can never have too many cakes. Eating the foods you enjoy help release endorphins, so keep up the guilty pleasures.

Thank you for the link you have provided, I shall be saving the page into my bookmarks and be reading with great interest.

Regards,

Jay x

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