Hidden illness
Hi I’m new to this iv had Ms along time iv never got over the lack of understand if you look ok you must be ok very frustrating just wanted to get it out there
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Hi @clare_kemp, welcome to Shift. That's the good thing about being 'around' other MSers, only we can know what it's like. Yes, we look normal, but other people can't possibly understand what is going on inside, and what a battle it is sometimes to keep going. You must have been young when first diagnosed. I was 50, which comes with its own set of problems! Anyways, any questions you have, or advice you could give others, type away..... :-)
Yes, even the well meaning comment of "you look great" can set us off ;-0 In my mind I say "Well, my MRI says otherwise"...my common response is "life brings hidden challenges" or something of that sort...it is good that from the outside I guess I look fine but know it is maybe harder for my boss, spouse or friends to understand that many times I am just coping as well as I can and need a break ;-)