Last reply 6 months ago
Cold sensations

I’ve been getting weird cold sensations from my foot to my shin? I’ll be sitting then all of a sudden that area feels cold for a few minutes then it’s gone

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Anonymous
6 months ago

Hello lukezni_1

If you have MS and often feel like your feet are cold, even when they are warm to the touch, you are experiencing a symptom known as dysesthesia. Dysesthesia refers to abnormal sensations that are unpleasant, potentially painful, and occur anywhere on the body, although they are most commonly experienced in the legs and feet.

Understanding Dysesthesia
While MS used to be labeled a painless neurological disease, experts now know this is far from the truth. In fact, up to half of all people with MS experience ​pain at some point in their disease course, with many developing chronic pain.

There are different types of pain a person with MS may experience, like the excruciating facial pain of trigeminal neuralgia or the eye pain of optic neuritis. When it comes to cold feet, MS experts call this pain a dysesthesia.

Dysesthesias can occur on their own or may be triggered by something in the outside world, often by a change in the temperature or weather. They also tend to be worse at night and intensified with exercise.

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What Does MS Pain Feel Like?
Sensitization of Your Nervous System
You or someone else may notice that your feet are warm to the touch, despite the fact that they feel cold to you. This is because in MS, the protective coating around the nerve fibers in your brain and spinal cord (your central nervous system) are damaged. This damage leads to faulty nerve communications that can cause erroneous pain messages to be sent to your brain. In other words, your feet are actually warm, but you think they’re cold because your nervous system is telling you they are.

With sensitization of the nervous system, two phenomena may develop:

Allodynia means that a benign stimulus like a light touch or cool breeze triggers pain.
Hyperalgesia refers to an increased sensitivity to pain. For instance, a pinprick on your foot, which is normally a little painful, may feel like a sharp knife.
It’s important to note that cold feet and other sensory symptoms are not necessarily signs that your MS is getting worse, especially if the symptoms come and go.

If you experience cold feet for the first time, however, it’s important to talk with your doctor because it could be a sign of an MS relapse or another medical problem altogether.

Other Reasons for Cold Feet
Examples of other health conditions that may cause cold or painful feet include:

An underactive thyroid (hypothyroidism)
Blood vessel problems (for example, peripheral arterial disease)
Diabetes (cold feet can result from both circulation and nerve problems)
Raynaud’s phenomenon
While these can be the cause of cold feet, they can also compound cold feet that are due to other issues like MS.

When Your Feet Feel Hot, But They’re Not
Tips to Manage Your Cold Feet
Besides the obvious, like warming your feet with blankets, there are other techniques—both medical and behavioral—that can help you manage your discomfort.

Distraction
Distraction is a great psychological intervention for managing pain, as it forces your brain to focus away from your pain and onto the activity at hand, especially if that activity is cognitively demanding.

If your feet are bothering you, consider trying one of these distraction techniques. Remember, though, depending on the intensity or nature of your discomfort, you may have to try a couple different techniques before finding the one that works for you:

Reading a book
Calling a friend on the phone
Playing a video game
Listening to music or a podcast
Coloring or painting
Completing a puzzle
Journaling
Complementary Therapies
Complementary therapies like hypnosis, cognitive-behavioral therapy, and mindfulness meditation can be especially useful in managing your pain, as well as other symptoms of your MS like fatigue or cognitive problems.

Medications
Of course, if your cold feet are significantly affecting your quality of life or impairing your functioning (for example, if you are falling or not going to work or seeing your friends and family), be sure to speak to your doctor.

The tricyclic antidepressant Elavil (amitriptyline) or a serotonin-norepinephrine reuptake inhibitor such as Cymbalta (duloxetine) may help; sometimes anti-seizure medications used to treat neuropathic pain like Neurontin (gabapentin) or Lyrica (pregabalin) can also be helpful. Some of these medications, though, do have side effects like sleepiness.

Topical capsaicin cream is another potential option for your feet.

Other Therapies
If your cold feet are impairing your walking and balance, you may need physical or occupational therapy. Regular visits to a podiatrist to ensure your feet appear healthy without ulcers, as well as special shoes called orthotics, may also be warranted. Seeing a therapist or psychiatrist may also be helpful as pain in multiple sclerosis can trigger or worsen depression or anxiety.

Remember to discuss any medications or therapies with your doctor first.

A Word From Verywell
Whatever form it takes, pain in MS can be debilitating, both physically and mentally. Seek guidance from your neurologist or a pain specialist can help you find effective strategies to feel better.

Kind regards

Adam


katrinaf93
6 months ago

This is actually the symptom I went to the doctor with that led to my diagonosis, definitely a thing 🙂 mine would last days as opposed to seconds though

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