Last reply 10 years ago
Telling other people about my MS

Hello – does anyone have any good ideas/tips on telling other people about their MS. I really struggle with this to the point that very few people in my life are aware – including my children which is proving to be a big challenge. Not sure how/when to tell them, etc.

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richard
11 years ago

Hi, the ms society can provide you with some great material to help explain ms including a DVD to make telling children. This stuff they provide free if you go online or call their helpline.
I told my 7yr old and he is fine about it, especially as we now get to queue jump at the theme parks.


Anonymous
11 years ago

Hi my kids seem to take it in there stride mind you they are older 17,15 and 12.When they found out my sister was coeliac they absorbed all the inf she told them and now i hear them telling people what its all sbout and i think they are the same way with ms which is educating them as they go along-sometimes kids deal with it better than us grown ups do 🙂


nell
11 years ago

Thanks for the advice – i have got some bits from the MS society. Recently started on Copaxone and thought that would be a good time to speak to the children but the conversation never seems to come up and i’m no good at the whole ‘lets sit down and discuss this’ thing. My brother in law thought the Copaxone was a box of cream cakes which i found quite funny!


debbie
10 years ago

I posted this some time ago and found this a useful thing to show people

I came across this not so long ago and found it really interesting and a good way to show others what MS means……

Web Address:


gav
10 years ago

I did quite a nice explanation of what MS was like, comparing it to oing backwards on a rollercoaster. The full metaphor thing is at http://mslifeandsuperpowers.wordpress.com/2009/06/09/life-is-like-a-backwards-rollercoaster/ =)


katiepea
10 years ago

My dad was diagnosed when I was 4 and I was diagnosed this year. As a child growing up with a parent with MS all I would recommend is reassure them that you’e not going to die anytime soon…Sounds stupid but I spent the majority of my childhood believing my dad was going to die and it was terrifying!

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