Last reply 8 years ago

Hi I’m new-hope you’re all doing as well as can be 🙂

I got back from the hospital last night after 3 days of IV steroids (1st course since dx). Had no advice about what I should be doing at/around home until follow-up appt next week. Do I need to rest up or business as usual?

Em x

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8 years ago

I’d say a bit of both. Do what you can with your capabilities, but take time to chill out too. I think you can get more tired if you just rest all the time. Well, that’s what happens to me anyway. I like to be up and about! Even if it takes me 30 mins to wash a cup!

8 years ago

I think the same,rest if you need it but don t forget that making an effort helps.well at least it helps me..

8 years ago

I was awake in the early hours of the morning with steroids, so had no choice but to rest during day. I was worried I had an infection as glands were up, but GP said it was fluid retention, body’s natural reaction to forgien substance in system. I went to toilet loads, but when I thought about it, retained fluid has to leave the system! Pace yourself, listen to your body! x

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