Reply To: Recently diagnosed

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1 month ago

Hi Nicole just a quick note to say that I hope you’re doing okay. I was diagnosed with MS just a few days after my 21st birthday – so quite a similar age to you – and honestly it felt like my world was ending too. Everything about it was so overwhelming – symptoms, making decisions about treatment and getting the support I needed from family and friends.

Fast forward five years – I have a career I love, a lovely home, amazing social support and my ms symptoms are under control thanks to the DMD I’m on and a great neurology team.
I was actually having a conversation with my brother last week and he said he wished he could go back in time and stop the MS ever happening to me. I said that if I could wave a magic wand I would love for scientists to find a cure and give it to me, but I wouldn’t erase the last 5 years because honestly I don’t know who I’d be without the MS. It has made me so much kinder and stronger and more of a determined person. Its shaped some of my life decisions too but now I can say that honestly I love my life.
I’m always going to get more tired than an average 26 year old, I’ve had to come to terms with some residual symptoms and when I think too much about the long term future I do get really scared. But on a daily basis I think my life is pretty good.

I’ve never posted on shift ms before but your message really spoke to me because I honestly felt so similarly at the beginning and I think a hopeful but realistic story from someone a few years on might have helped me. Being diagnosed at such a young age is really difficult. It’s so hard to make life choices that you’re expected to make in early adulthood with this diagnosis, but I do think it can be done. I just always tell myself to keep my head up and keep going, little by little. And to reach out when I need to, which you’re already doing here 🙂
Wishing you the best of luck with it all x