Reply To: Like minded people needed…..

Home Forums Speakeasy Like minded people needed….. Reply To: Like minded people needed…..


lilyloo
2 months ago

Thankyou everyone for your replies. I have elements of everything you guys are saying….not able to hold a pen…the embarrassment of a disability aid…at 50!…I just can’t do it….not even the walking stick I need in order to get out the house. I just want to curl up and cry! This isn’t who I am….
I’ve had Alemtuzamab…and a stem cell transplant last year… Both haven’t worked.. my MS nuse is fantastic…but she can’t cure me.. u have a wheelchair rep coming on Monday…and I’m unsure I can do it!! I was a theatre nurse…and can’t work anymore…I loved my job…and was bloody good at it…I need to find a purpose to my life…MS has cost me my 11 ye old son….my older children barely have anything to do with me anymore….we were close!…my job…. running and sport….my social life. I’m hoping to find a way to be more positive….I was a smiley upbeat person….it’s taken that too…