Reply To: Fingolimond

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2 months ago

On fingolimod, you should be attending a skin clinic for an annual screening for these issues. It’s a standard part of the monitoring protocol (i.e. in addition to the bloods, MRI etc) so you should definitely press for that. Your GP should have had a request to set this up from your neuro team, so you maybe need to go through the MS nurse to get this in place. I get skin issues too, because fingolimod lowers the immune response to the human papilloma virus. This causes warts. I’m told that actual skin cancers with fingo are rare but can happen, but in any case the warts need to be dealt with if they are causing discomfort (they’re treated with a freezing spray) at the clinic. I had a nasty one on my thumb which took two treatments to clear. And in any case, you need the reassurance that only proper, regular monitoring can bring.