Reply To: Flare up still going on

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2 months ago

I went through a relapse in October, first ‘big one’ since I was diagnosed 7 years ago, and I still haven’t been able to recover from it 9 months on . I had a neurologist appointment last week to discuss either a 3rd round of Lemtrada or to go onto ocrvus (which should have been in April but Covid had other plans), and the euro broke the news to me that I an entering the progressive phase and that another dose of Lemtrada or trying another DMT would more than likely been ineffective for me. To be honest, its not the entering SPMS that has necessarily bothered me as such, it’s there not being any DMTs available for me for the first time in 7 years that got me.

Please don’t let the longevity of your recent flare over ride the treatment outlook that you are receiving at the moment, and if not then please speak to your nurse/neuro on getting started on them.