Hi all, I just wanted to give you a little update having seen my neurologist yesterday.
First of all it was so good to actually see my neurologist as the last 3 or 4 times it has just been a different doctor or a nurse. Don’t get me wrong, the MS nurses are fantastic. But it’s good to be able to speak to the neurologist directly.
My last MRI (June 2020) showed a number of new small lesions on the left side of the brain. As a result, my neurologist is recommending I stop taking Copaxone and switch to either Tecfidera or Tysabri. He ordered a series of blood tests and one of those includes a test to check for antibodies of a virus which will impact whether or not I can go on Tysabri. I’m sure a lot of you out there know a lot more about that than me!
He did a full neurological exam and said it was really strong and good and he couldn’t see any further deterioration in me which is good. But he also couldn’t really correlate my new symptom of random waves of numbness in my left leg, arm, shoulder. He said normally there would be lesions on the cervical spine causing this but my cervical spine is really clear. He also said the new lesions on the left side of my brain wouldn’t affect the left side of my body. But he did mention some kind of like mini lesions (I wish I wrote it down!) that can often be difficult to see but can cause these kind of random sensory issues that come and go. He also asked had I seen my GP to check for any other issues- I said I hadn’t so he has included some extra things in the blood tests such as checking my thyroid etc. just to be sure.
So now I just have to wait for the bloods and see both if they indicate something else going on in my body and also to see what medication I can try next. The reason he suggested Tysabri and Tecfidera is that they are both safe to keep taking up until at least conception and I’m at the age where kids may be on the cards in the next few years.
Anyway apologies for the long post but that is the full update. I’m feeling more positive but still a little concerned that there might be something else going wrong with my body! As if MS wasn’t enough right?! 🙂