Reply To: Tecfidera

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barbara_s_murray
1 month ago

I could not tolerate Tefidera at all. It caused me to flush for 5 hours at a time. I would be beet red a d strangers would point and you could hear them say what’s wrong with her. Quite embarrassing for my husband mor than myself and it would itch and feel hot. Not for me. I have had MS for over 30 years. It was benign for about 24 of those years and now I don’t know what is happening, but these last 6 years I have been in a lot of pain. I am on my 4th neurologist just by the weird twist of fate that my last 3 retired within 6 months either to old age or different fields. Right now I fear for having MS for so long that it has progressed into Secondary Progressive MS.
I don’t see my new doctor for another 5 months which I would make sooner except for this Covid -19 and I really don’t want to go out because besides MS I also have 3 other autoimmune diseases. Once you have one, as you age, sometimes, they seem to compound into a lot more especially if you don’t take care of yourself and eat properly which I didn’t when I first learned I had MS. Now we know so much more than 30 years ago. No excuse not to eat right and exercise if you can.