How will the TONIC study will help MSers and how MSers can get involved?

In this video Michaela interviews Professor Carolyn Young who is a Neurologist. The interview was filmed by Victoria

Video transcript

Michaela asks Dr. Carolyn Young how the TONIC study will help MSers. She then asks when they expect to get the results.


Michaela: Could you tell us how the TONIC study will help people with MS?


Dr Carolyn Young, Neurologist: Well, TONIC stands for Trajectories of Outcome in Neurological Conditions, and what we’re doing is we’re looking at how MS changes over time for people with the condition. We’re really interested in the factors that influence their quality of life and to understand why these factors interrelate and influence the quality of life we need to study large numbers of people with different types of MS at more than one time point.


And we’re doing that by a postal questionnaire type study, so people might join it in clinic, or by self-referring, which they can do via the internet, and then they get a questionnaire pack to fill in at home. It’s quite long, because it’s a detailed assessment, but it’s straightforward to fill in, you just tick the answers, and when it’s complete you put it into the envelope and post it back and we will analyse it, anonymously.


Michaela: And when do you expect to have the results from that?


Dr Carolyn Young: Well, we’ve got a number of results already out there, so we’re analysing as we go along and I’m really delighted that we’ve got over 2,000 people who’ve already joined. So we’ve taken work to various MS meetings and examined, for example, how coping changes, how hope changes, how fatigue changes. We’re looking at what happens with pain in MS, stiffness in MS, how the drugs work, all sorts of things that influence people’s quality of life.



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