So I have round 2 for lemtrada coming up in a few weeks. For round one I told my kiddies I was staying with Nanna rather than talking to them about anything. I didn’t want to worry their little minds :-(. I have always been extremely private about my MS which has caused me a lot of worry over the years and has probably made it harder. I look “fine” so it has in that way, been easy to hide.
My kids are 3 and 5 1/2 and i am always talking to my kids about being open about everything and talking about how they are feeling etc All the while I am hiding this and it’s eating me up !!
I have not spoken to them about it for so many reasons (mainly my 5 yr old as my 3 yr old obviously wouldn’t understand too much) probably denial, fear of others finding out – they tell total strangers EVERYTHING. By telling them this I will need to be prepared to have anyone we know then ask me about it 😬😬. But mainly because I want to protect them :-(. I don’t want them to be worried or fearful or feel like anything has changed :-(. I just want to be the perfect mummy to them 😪
So I’m just wanting thoughts and experiences if possible as I can’t get this off my mind. I know in my heart I just need to keep it simple and talk to them. It’s always going to be a part of our lives and I don’t want them thinking they need to hide it..
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