kea21 30/04/17
Last reply 9 months ago

Hi, I am still not on anything/medication since stopping Gilenya because I was having so much trouble with it.
The powers that be were going to start me on Tysabri (which I am still not keen on) but I keep being delayed due to my bloods still all over the place? My white count has come up a little,but not much and is still only .06 ???
I am clearer headed and some days almost normal, but others I am still having morning headaches and dizziness,plus some bowel issues?
I am starting to think maybe something else is going on??? It has been over two months plus?

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9 months ago

@kea21 , 6 – 8 weeks is considered the normal washout period for Gilenya, but we’re all different.

It sounds like you need to discuss these “symptomatic” problems with your medical team.

9 months ago

Why did you stop gilenya? Watch out for rebound effect! I stopped few years ago and i was relapsing after 3 months.

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