I’ve been on tysabri since July 2017, my first DMD, mainly because i refused to inject myself (fear of needles but that’s a whole different story (,”) ) I first got ill when I was 17, I was a sporty kid, enjoyed anything sport related however I then ruptured my ACL. I went on to continue playing footie for Chelsea ladies and ended my career when I ruptured my other ACL. After many surgeries and not getting my knees back to normal I gave up on sport and concentrated on working. However in May 2011 I was medically retired from the NHS, still awaiting what was wrong. The nurses I worked with noticed my eye was droopy and I went for tests. I didn’t get the correct diagnosis until I was 26…after being told I was clumsy, had ME, referred to psychiatric care for my pains that no one seemed to believe. It was almost a relief when getting the diagnosis, finally someone knew what was wrong with me, it felt great. Now at 32 I always ponder back to that moment of complete joy and wonder what I thought was so fantastic about it. I currently am retired and in a lot of pain, I’ve had 3-4 serious relapses that freaked me out so much I was literally begging to go on treatment. My whole right side being numb and not working. However I am finding tysabri has done some strange things to me..I’m curious to know if anyone else suffers with the same side effects…Ive had really thin skin since starting this treatment and I seem to get more headaches than before. I take citalopram and clonazapam at night, I can not tolerate gabapentin, I was the same with pregabalin, bad mood swings 🙁 My ex boyfriends can vouch for me on that unfortunately. Does anyone know of any other pain killers other than the usual paracetamol/aspirin that would help? I was taking co-codamol, but my MS nurse said that I have been using it too much and to see if I can cope without it. Its been a week since I took any and I’m in a lot of pain…any advice would be appreciated…thank you in advance. Hope everyone is doing ok tonight.. G xxx
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