Hi. I’m new to shift ms and I’m in need of advice regarding treatment. When I was diagnosed I was put in tecfadera, this gave me terrible side effects and I was moved to aubagio. Which has failed miserably. I have had 3 relapses in 12 months and 5 in 2 years. So I got a letter saying that I could be moved to Gilenya, tysabri or lemantra. But I have psoriasis and the Neuro was looking for one that would treat both. He asked my dermatologist and that’s it possible (its not) and I heard him say I’m probably going to give her Gilenya then. My question is do I have a say? I’m not keen on his choice as I’m worried about the side effect of macular oedema. I have virtually lost the sight in 1 eye due to optic neuritis and I can not lose my license as I live on a farm miles from anywhere. Can I ask for a different one? The ms nurse sent me information on the 3 treatments that were in the letter and I’m leaning towards tysabri. But like I say I don’t know if i have a choice. Any help would be great. I feel very confused & I’m worried about progession and I need these relapses to stop!
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