Last reply 6 years ago
To tell or not to tell?!

I need advice! I was diagnosed with MS about 3 years ago and have so far employed a ‘scatter gun’ approach to telling friends and family. It’s hard to know who to tell and when.

I think I now want to just tell everybody I know and work with. I’d rather be open about the condition and show a positive example to those who have misconceptions about MS.

Does anybody have any experience of doing this? I respect Jack Osbourne for being so open last week, although I know there was some backlash against him for it.

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6 years ago

I’m personally very open about it, though I don’t make a point of informing people, I just don’t shy away from mentioning it if the need arisies. I’ve told all my friends and family, the only people I possibly wouldn’t tell are people I only “sort of” know. Like if I bump into an old school friend for example, as what would normally be a 10min “hey how’s life” could get a little serious or weird when telling them about an incurable neurological disease!

I’ve had no real negative reactions though, except one guy in the gym, we were just having a casual chat and when he asked if I was on shifts as I was there early morning, when I told him no I’m not working at the min due to having MS he made his excuses and left! Ah well, not exactly lost any sleep over it!

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