What a wonderful, supportive and informative community this is! I know a couple of people who have MS, but my foray here is really to undertake research for my next novel.
My protagonist suffers from Primary Progressive MS, and I would like to understand what she would have been feeling before she was diagnosed. And as such, I’d love to know more about your individual experiences at the start of your MS. In particular:
1. Did you suffer a lot from fatigue, or did you always need a lot of sleep?
2. Did you have a period of depression that you didn’t understand prior to diagnosis? I’m trying to understand the causality here. Does depression cause MS or is it the other way round?
3. Did you suffer from emotional volatility prior to an early episode?
4. Do you feel MS has altered your intrinsic personality?
I’m trying to understand where the person ends and where the disease begins, and to do my character justice. Your help will be very gratefully received!
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