At the beginning of 2011 I had a major flare up/relapse really knocked me on my ass. After being tossed back and forth between specialists and the crazy wait to get in to see each one, I finally got in to see the neurologist. But the flare up was over at this point and neurologist didn’t take me seriously. She spent less then 30 minutes in the room with me, rushed me through telling her what was going on with me, rushed through a general neuro exam and then sent me on my way with a referral for an MRI and a blood test. Everything came back negative and she told me ‘Its not MS. Go back to your GP’. It felt very much like I was a kid screaming that there was a monster in my room…she checked under the bed, declared that no monster exists, and left it at that. She didn’t bother to truly check for the monster.
And thats where I have been stuck since. My GP can’t and won’t do anything about my symptoms because she doesn’t know whats wrong. I’ve seen quite a few other doctors…all of them are impressed by the carelessness of the neuro I saw and tell me to go see another one. I have a symptom list that is pages long and am now at the beginning of yet another flare up.
On July 10th I have an appointment with the head neurologist in the neuro-muscular department at one of the top hospitals in my area. I was terribly lucky to get in…since when I tried last time (after the dismissal from the last neuro) they denied me. And this is pretty much my last hope for a dx.
If anyone has any suggestions or information on how I should prepare for this appointment it would be greatly appreciated!! I want to make sure I give myself the best chance possible for finally getting a dx.
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