Hi – newly diagnosed (end of last summer) and started Tecfidera with mostly no adverse side effects (phew!).
I am starting to share a bit more widely than with immediate family and close friends but find it hard to deal with the ‘head-tilt’ of sympathy and the “how are you doing today?” which, whilst kindly meant, is a bit annoying when it is my aim that it changes my life and routine as little as possible.
How do other people communicate it and, if you have had similar experiences afterwards, how do you react/deal with it?
I guess there are always lots of questions but those are the things that I’m struggling with most at the moment. Thanks 🙂
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