soprano 22/03/18
Last reply 3 months ago
Subdermal port placement

Hi. I’m being treated with Tysabri, and feeling presssured by my hospital to have a subdermal port placed for easier vein access. For reasons of aesthetics, physical comfort, and modesty, I do not want a port placed on my chest, however this is the only location offered by my treatment team. I know chemo ports can be placed on the arm (inner arm?) so would that be something I could arrange to have done for my Tysabri treatments? I’d be willing to pay private costs and travel anywhere in the uk to have it done.

Anyone know more about this? Thanks.

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stumbler
3 months ago

@soprano , what is the problem with cannulating you each time? The potential cost of implementing a subdermal port, and the ongoing care, would seem to undermine the financial viability of this approach.


soprano
3 months ago

The less experienced nurses sometimes have trouble finding veins on me. The most experienced Sister and the doctors have managed it fine, but some of the others have struggled and recommended I get a port to make it easier to infuse me. I think they’ve noted in my chart that I’ve got ‘difficult’ veins so it starts the session off with everyone a bit apprehensive.

I am not squeamish and I don’t mind repeated attempts (I really don’t want a port) but failing to get the cannula in several times seems to get the nurses stressed out.

I’m also a bit concerned that my veins are being made worse by these failed attempts, but I don’t complain, as I am trying to avoid a port 😉

I try to make sure I’m hydrated and I bring a heat pad to keep my arm warm but now that I have this bad rep as ‘hard to cannulate’ people are nervous before even starting to try. The stress does get contagious!


stumbler
3 months ago

@soprano , I was going to say that you should ensure that you’re hydrated.

I suffer a similar problem, but a glass of water just beforehand normally does the trick for me.

It is a case of inexperience. a phlebotomist would have a needle in a vein very quickly.


soprano
3 months ago

Thanks for the reassurance that for cost reasons they won’t be likely to push too hard. I guess I’ve been feeling quite disempowered with my treatment plan – it’s taken 5 years to get on DMDs and in the meantime I’ve had some extreme relapses so I’m afraid to resist anything they want done. I’m scared.

In any case, despite the fact I don’t want one at all, does anyone know if a port can be placed in a more discreet place if I’m willing to pay the costs privately?

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