Hi, I’m Lisa, 37 and currently undergoing tests to see if I have MS.
My mother has MS and has had it all my life. She is now bed bound, unable to eat or drink due to aspiration and has very little memory/brain function left. It’s simply awful and I’m terrified.
Last year I tripped and lost balance a few times but thought very little of it. Earlier this year I started getting numbness in my feet and hands so I contacted my mum’s neurologist who ordered an MRI scan which I had in July. It showed abnormalities but not all in the usual places for MS. I’ve had a lumbar puncture and only half the results have come back so far but they were clear.
My neurologist gave me a physical exam and said my reflexes were a little rapid but nothing too extreme.
I now find myself stuck waiting for another MRI scan to see if they can determine if the inflammation is active. If I have it, I’m not sure I can cope. I know treatments have changed since my mum developed MS (she went 15 years of active MS without any diagnosis or treatment).
I was told to join this community to see if helps. Hopefully it will because I feel I do need help to stay positive.
Thanks for your time reading this. Any advice welcome.
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