Last reply 4 months ago
Still no Diagnosis Clear Mri?very fed up

So sorry guys looking for more advice as am in so much pain.
I had three Mri scans Brain Cervical and thoracic done by an independent company these were done without contrast three weeks ago in the meantime I have increasing burning nerve pain all over my body and hands are very bad.I have deteriorated since I first saw my Neurologist.I was getting no follow up on the results so rang her secretary explaining the pain was way worse and my hand is weak.
The neurologist rang me a few days later said the Mri scans are normal and I could increase my painkillers and she will write to the Gp to do more bloods.In the meantime the pain is not improving burning everywhere.My friend who has Ms told me I need to be referred to an Ms specialist and should have scans with contrast and a lumbar puncture
Just want advice if the Mri scans Brain Cervical and lumbar with no contrast come up clear does this outrule Ms???
Any thoughts appreciated as am not getting better!

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stumbler
4 months ago

@maura, our bodies are complicated pieces of machinery, especially where the brain is concerned. And, our doctors aren’t magicians. They have to work with their physical examinations, scans, blood tests, analysis of cerebro-spinal fluid (CSF) and nerve conduction tests.

All you can do, to help them with their investigation, is to list all the strange symptoms and pains that you have experienced, with dates and durations, if possible. This medical history would be another piece to the jigsaw.

Then you have to “dig your heels in” and keep asking for your symptoms to be explained, If results of tests and scans come back inconclusive, you need to demand what the next steps will be to reach a diagnosis.


maura
4 months ago

Thanks @stumbler still feel in limboland
Nerve pain is worse and no explanation just told to take more tablets Amitriptine)although they make me drowsy in day. no explanation for my weak hand
or worsening of symptoms. Have not seen an Ms specialist only a general Neuro she
is planning more bloods and if nothing in them it is peripheral neuropathy of unknown cause am not too happy about that will keep looking for answer
Is it unheard of to have a clear Mri with ms ???
Thanks very much


stumbler
4 months ago

@maura , this previous post may make interesting reading :-

https://shift.ms/forums/topic/clean-mri


maura
4 months ago

Thanks @stumbler you always show up at the right time to advise people in crisis much appreciated
Hopefully will get answers not happy with the worsening symptoms so will keep searching.


stumbler
4 months ago

@maura . don’t keep searching, but keep asking the question, “What’s causing it?”!


texasmary
4 months ago

@maura – I know others who have never had a lesion appear on MRI, but spinal tap confirmed diagnosis. Microscopic lesions perhaps? Who knows? However, my key point is MRI isn’t always the defining test which determines an MS diagnosis. Keep on top of your doctors for answers


maura
4 months ago

Thanks Mary finding it very hard to cope with the pain.Hopefully answers soon.

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