Last reply 3 weeks ago
Sorry to go on…!

Hi again, husband is doing dinner so I am having a catch-up on here! Not feeling well, about 2 months since the neurologist wrote to me that the likely diagnosis is that of MS. Waiting for appointment at the Royal London. When I do have that appointment I think I will ask for a certificate to prove to family and friends that I have MS πŸ™‚ I just get frustrated that no-one seems to understand! And my dear mum always texts that she hopes I feel better soon. Oh well hopefully that appointment will come soon!

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grandma
3 weeks ago

You’re in what we call ‘limboland’ worst place in the world to be. Until you get that dxd, and I wouldn’t wish this disease on anyone but the long waits can be mind blowing. I know it’s easy to say, but try not to stress about it, if it does turn out to be ms stress is the worst thing for it and can exacerbate it even more. If it does turn out to be ms, you will get an ms nurse, a DMT that suits your type of ms, age lifestyle etc., I know it seems like a long wait but hang in thereπŸ₯ŠπŸ™πŸ»πŸ˜«πŸ˜


dramaqueen
3 weeks ago

Fingers crossed its not ms try not to think too much. Its a little unfair to receive this letter, hope your appt isnt too long.

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