Last reply 7 months ago
Scary limbo land

I was diagnosed with CIS in November, and last Wednesday my feet went numb and I became incredibly fatigued again. I am being sceduled for another MRI but I already feel like I know what the answer is going to be.
I had no idea what MS was until about 3-4 months ago and it’s scary to think that now it might be a huge part of my life. I almost want to be formally diagnosed now so that I can get the support from my university that I feel I need right now.
I am new to this and have never written on a forum before so I’m slightly terrified but I hope I’ve done OK!

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vixen
7 months ago

Hi @sleepyrachel. Sorry you’re going through this, it’s very tough. There have been quite a few posts from UK students recently so you’re not alone. I got diagnosed last year too and it took that to get me into social media too! You will need to keep on at the referral service to get a quick appointment, so keep making phone calls. If you do get a diagnosis, please know that the world of MS research and medications has really moved on recently, so a diagnosis today isn’t what is was several decades ago. Stick to official sites like MS society or the Barts or hospital sites for info, as Fr Google can be misleading and depressing. There is tons of support on here, and Shift posters will all understand how you feel. Good luck and stay strong, you will be OK. And please let us know how you get along x


stumbler
7 months ago

@sleepyrachel , for a first post on a forum, you’ve done fine.

Limboland has now become less of a wilderness. Clinically Isolated Syndrome (CIS), an isolated neurological episode, is now being seen as a sub-type of MS.

So, you need to follow @vixen ‘s advice to get an early referral to a Neurologist.

There will be an MS Nurse, who covers your area. It may be worthwhile contacting them to discuss what’s going on now. They may be able to expedite the referral.

You should be able to locate your MS Nurse here :-

https://www.mstrust.org.uk/understanding-ms/living-ms/map-ms-services


aabreu
7 months ago

@stumbler Every comment you make has a link with more info. You are such a great resource.

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