I woke up 21st July 2013 (first day of the six week school holiday) with a numb hip, buttock and thigh, which progressed to my whole left leg within a week. |t is like walking on a foot and leg that you have sat on for hours, feels ten times the size it is and on a bad day can only walk a short distance before I can’t lift it. I then started getting sever banding and shooting pains in the waist on my left side as well as a ‘bag of bugs’ sensation under the skin.
I had an MRI which showed an intrinsic inflammatory lesion around T8 and a single lesion in the brain and was diagnosed with Transverse Myelitis but then a numb patch occurred under my left foot and my right arm and face felt weak and slightly numb so had a lumbar puncture which showed CSF oligoclonal bands and so was diagnosed with RRMS in September 2014 and have now been on Tecfindera since February. My consultant said that as so much time has passed since my first full leg symptom, I will not now recover from that.
The thing is, the more I am on this site the more confused I am in that, I have had no ‘relapses’ (and not sure that that means in reality) and have everything and more than that very first day. I have not had any recovery whatsoever!
Is this not then SPMS?
I really don’t want to be taking medication if I should not be on it as Tecfidera is only for RRMS I believe.
As for Lemtrada, I’ve never been told about this and have only learnt of it’s existence on this site.
Thanks for reading.
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