Anonymous 07/05/15
Last reply 3 years ago
relapse recovery time?

hi all,i keep thinking this relapse is over-been going on a few months now-but it keeps catching me out…first i thought i was recovered after a clear 24hrs (nope symptoms came back) then had a clear 48hrs (came back again)
so how long without any symptoms can i safely say its over? so i can start getting back to normal if thats possible…

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stumbler
3 years ago

It depends on how long is a piece of string? Sorry, that’s a bit facetious, but there really is no rules to MS. We’re all different, so no two people have the same MS.

All I can say is that you have to allow yourself to recover. As you are having good day and bad days, you may still be trying to do too much. When we overdo it, our MS does “grumble” to remind us that we have to manage it.

Have a read through of the “Spoons” theory of MS Management :-

http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/

But just look after yourself and be kind to yourself. 😉


mattymohawk
3 years ago

hello.best advice i ever had from my ms nurse is to do what your body is asking.forget normal routine for a few days and eat well and rest when your body asks.life is stressful at best but i get a definite link to mental stress and old symptoms playing up so relaxing both body and mind is important but i know that can be hard for a lot of us.i often forget how serious our conditions are but soon pay the price for not getting good sleep and eating fast food.when i do take time to myself and prepare healthy food and have sneaky naps i feel great (not much time with 4 kids though 😩) and it seems to hold the worst things off.hope you feel better soon


krisp
3 years ago

Hi what symptoms are you having
I know they say some things tend to stick around longer than others like sensory issues and spasticity


Anonymous
3 years ago

thanks for all advice..i have been taking it very easy,i am very good at sneaky naps too!

It started with ON & vertigo and now its numb scalp and parts of head (new)/headaches(new)/eye aches/droppng things and pains in legs like when standing they hurt and pulling me down backwards(new)

if i get no symptoms for a week say could it be described as over or are these things always going to be there lurking in the background waiting for any opportunity to strike?
stumbler i get the impression this is what your trying to tell me…


stumbler
3 years ago

Existing symptoms are potentially going to re-surface when your MS “gets upset” with you or if your immune system gets activated by a run-of-the-mill infection.


cameron
3 years ago

I know it can take months and months to get over a relapse, so you may be expecting too much too soon. I don’t think there’s much you can do about that directly but remember that the stress you’re feeling FEEDS the MS and may be slowing recovery. Maybe building in some treats (e.g. a massage, jacuzzi, even some retail therapy?) could help. Last resort – anti-anxiety meds. BTW – has the neuro team prescribed steroids? xx


Anonymous
3 years ago

thanks cameron,if its months and months then i think ur right about expecting too much too soon, no no steroids or mention of, it went a bit like this

neuro-“its more than likely ms……goodbye”

no mention of how long relapse gonna last-who to call if things get worse-how to live life in meantime…

ps im not sure if retail therapy will work for me being male,maybe i will try unretail therapy lol


cameron
3 years ago

@ironribs – – unless you get a more positive response from your neuro when next you see him/her, I’d be concerned that you’re getting a raw deal. I speak from experience – had I stayed with my first neuro, I fear I’d be in a wheelchair now. I’m not being a doom-monger here, but I do know that getting the correct advice/info and timely support is KEY to dealing with this. Maybe time to get in touch with your MS nurse and have a conversation about your worries? Worst case scenario (i.e. no support), remember you have the right to a second opinion. xx


cameron
3 years ago

PS And the first question I’d be asking is: ‘Why have I not been offered high-dosage steroids to hasten the healing process?’


Anonymous
3 years ago

hi cameron i dont have a ms nurse,i am seeing an ms specialist? in a few weeks now.maybe thats when i get the proper diagnosis and answers-its just getting from now till then thats gonna be the problem.


stumbler
3 years ago

@ironribs , check out this website to find out your local MS Nurse:-

http://www.mstrust.org.uk/information/services/

You can self-refer to most MS Nurses. 😉


Anonymous
3 years ago

thanks stumbler-how do i self refer? just call their number?


stumbler
3 years ago

@ironribs , sounds a good way forward. 😉

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