I am due to have Lemtrada from 19th February. The issue now though is, I recently started relapsing for the 10th time in the last year and knowing that they give you steroids as part of the infusion I would normally push through but this is the difference between me being able to move around my house, get to the bathroom on time and generally look after myself. In a week I’ve gone from finding it hard to walk and stand to it being damn near impossible. I am unable to stand unaided. My husband is taking a lot of time off when I have the lemtrada so until then I’m home alone 5 days a week. I know it’s just a month but when you can no longer cook anything, shower and dress yourself that’s a long time.
I’m seeing my nurse tomorrow and I wonder if they will be able to treat me with steroids so close to lemtrada? has anyone been in a similar situation?
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