asurf777 25/03/17
Last reply 1 year ago
"Probable" MS

So today I was told I was dx probable MS after my Neurologist found an O-band in my CSF from an LP. My serum was clear. He is sending me up to Dallas soon to meet with an MS specialist.

However- my lesions are tiny and in my frontal lobe (not totally common). My spinal MRI’s were all clear. I did have optic neuritis a month back.

So I guess I was wondering if someone could clear up what makes the dx probable or definite?

Also with all the insane muscle ripples I’m having..is there anything other than MS that could make bands in the CSF?

Have any of you ever been “probable”?

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californiadreamin
1 year ago

I think there are a number of other posts on this on this site but MS is a clinical diagnoses so many people here were likely probable until it converted to MS. The csf bands are only like 90% accurate for predicting MS I believe.

let us know what the specialist says but seems like there are some lifestyle changes that might be worth pursuing at this point if they aren’t sure. If they aren’t thinking a drug is appropriate right now consider lifestyle changes like diet and exercise to reduce the odds it will ever convert. In our family we follow overcomingms but there are many other sites and options but that’s what we have been doing.

Hoping for the best for you.


stumbler
1 year ago

@asurf777 , for a definite diagnosis of MS, specific criteria have to be met :-

https://www.mstrust.org.uk/a-z/mcdonald-criteria

The medical professionals like to be certain before they make this kind of diagnosis.


colinbannon
1 year ago

With real symptoms and lab results, you need a diagnosis as there are important decisions to make, certainly on a brain healthy lifestyle and on early treatment too.

The difference between the Overcoming MS programme and others out there that it is based on the best evidence out there with no particular axe to grind.

The measures also make the best sense in terms of general health, although I think that sugar in all its forms is best avoided by anyone with health problems, or anyone trying to avoid them, in other words, everyone.

Good luck and good decisions.

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