Hi. Haven’t been on here much since starting on Gilenya about 9 months ago but have just acquired a new symptom: pain 🙁 Although I’ve been diagnosed for a few years, whenever anyone asks me what my MS is like, I can usually answer that it’s not really THAT bad for me. At worst it’s been bloody inconvenient, irritating and mildly debilitating (fatigue especially) but the pain is a whole new ball game. I have had intermittent stabbing pain in various places on my left side over many years, but it seems to be becoming more frequent, more widespread and much more intense. It’s a sickening, sharp, stabbing pain – sometimes in my ankle, sometimes my ear, more recently in specific fingers, calf etc etc – which kind of pulses on and off for a brief period (few minutes max) then goes away, only to return in the same place or somewhere else a few hours, or days, later. From everything I’ve read about MS and pain, this doesn’t sound typical. Does anyone else experience pain in this way? Sometimes the pain is so acute it literally takes my breath away.
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