Last reply 2 months ago
Ocrevus infusion

Hey, so I’m just about to go on a medical trial in Canada for new ms med, but first they are switch me to ocrevus infusion. Any one have information on this med for positive or negative effects?

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marilynlowery
5 months ago

Ocrelizumab (Ocrevus). This humanized immunoglobulin antibody medication is the only DMT approved by the FDA to treat both the relapse-remitting and primary progressive forms of MS. Clinical trials showed it reduced relapse rate in relapsing disease and slowed worsening of disability in both forms of the disease.

Ocrevus is given via an intravenous infusion by a medical professional. Side effects may infusion-related reactions including irritation at the injection site, low blood pressure, fever, and nausea among others. Ocrevus may also increase the risk of some types of cancer, particularly breast cancer.

I am sure that you have, by now, seen this. But, just in case, I copied and pasted for you. Good luck!!!


freddygiguere
5 months ago

@marilynlowery

Ya I’ve read that but thanks a bunch 🙂 👍


marilynlowery
5 months ago

No problem!


vixen
5 months ago

Good luck @freddygiguere, you are lucky as Ocrevus hasn’t been approved in the U.K. from the research I have done, I haven’t come across many negatives about the infusion or effects. In fact it seems to me that some people having it say they actually feel better after, which is not a feature of many DMDs, please keep us posted, and good health!


freddygiguere
5 months ago

@vixen

I’ll keep you all posted. Thanks. I’m more nervous cause they want me to take that infusion plus a new drug trial infusion on the same day.


nessieb73
5 months ago

I’m on ocrevus, in Australia.
Just finished my first two ‘half doses’. These are done two weeks apart.
I felt absolutely fine through the infusion and other than being a bit tired the following day, which I’ve put down to worry about the process, I’ve not had problems whatsoever with it…
Only finished my second half dose this morning though.


freddygiguere
5 months ago

Awesome thanks 🙂


dvtrv
2 months ago

Hey there @freddygiguere,

Ocrevus has now been approved by NICE here in the U.K. and I’m having to consider a different Med after 7 years of being on the excellent Tysabri due to reasons beyond my control.

I’m liking the look and sound of Ocrevus but am interested to see how others whom are or were taking it to assist my decision.

Are you now taking Ocrevus, or in your experience/knowledge, which is more than mine, can you tell me anything about it?

Get back to me if you are able.

Cheers pal,

dvtrv


freddygiguere
2 months ago

@dvtrv.

Ya I’m on ocrevus now and the only negative thing I’ve encountered with ocrevus is that it’s boring lol getting infusions is sooo boring, other then that only side effect is a small headache and tired that’s it, so when you got for your infusions do NOT go alone. Driving while tired by a medication is a bad idea. The way it worked for me was first full concentrated dose was spread in 2 weeks spread about 4hrs per infusions and now it’s only every 6months


freddygiguere
2 months ago

@dvtrv another thing I forgot to mention is I was on avonex and I went through hell with the side effects from that medication so I’ll be honest this ocrevus is probably one of the best decisions I’ve made since my diagnosis.

Hope I could help on your decision.

Freddy


dvtrv
2 months ago

Good to know.

The driving scenario seems like it could be my only issue 😬

Good man thanks


mlgilber1
2 months ago

@freddygiguere I’m so glad it’s been going well! I’m just waiting on insurance approval and then I’ll be starting ocrevus. I’m so excited!

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