Not sure what to write…
First event in August 2017.
As yet i haven’t been diagnosed with MS even though the MRI show the lesions (inactive at the moment) and have been since October 2017. I had symptoms for which the neurologist advised i could do a course of steroids. I did the course and things settled for a short time. It helped briefly and some of the symptoms returned.
Now April 2018 and the last 2 MRI’s show no more lesions and not activity, which is good but i am still getting symptoms. At the moment i have calf burning spasms and twitching, the twitching also includes the left shoulder and hand. at night the calf twitches and i get a little spasm (kick out) and randomly through out the day. The spasm in the hand and shoulder is just random anytime. I have learnt to accept this.
the newest symptom is burning in the finger tips on the left hand.
Just had visit with Neurologist and he concerned that the symptoms are still happening and he fells they should have stopped with the steroids. I understand it can take sometime to confirm Diagnosis but i feel so…..lost, frustrated, and even thinking this is just a bad dream and i will wake up an it will all be gone.
Now looking at one of the following treatments:
and a newer treatment Ocrevus
All this is so frustrating for myself and off course when we get frustrated the first people to wear it are our loved ones and sometimes friends. I say it must be frustrating for my husband as there is not a lot he can do to help other than just be there as support. I do try and explain the symptoms so he can try and understand but it makes me feel like I’m complaining .
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