Last reply 2 months ago
None Active Lesions

Just had an appointment at Hospital with the Consultant.

No new Lesions were present on the last MRI I had and the ones that are there are not Active, yet I still get spasms and have symptoms?.

Feeling more than a little confused.

Add categories

Browse categories and add by clicking on them

You can remove current categories below by clicking the ‘x’.


stumbler
1 year ago

@peterfrancis , it’s good news that your MS does not appear to have progressed.

However, there could still be residual damage from previous relapses that are still causing symptoms. It is possible for the body to try and repair this damage, especially now that the MS isn’t seeming to progress.


peterfrancis
1 year ago

Now if the consultant had put it like that I’d be a lot wiser.

Thanks.


vixen
1 year ago

Hello @peterfrancis, I was diagnosed with RRMS in 2017 and let me tell you, I cannot make any sense of anything. Nothing seems to relate to what others with T
RRMS experience. I recently started feeling a bit poorly with some old and new symptoms flaring up. I resigned myself to having another relapse. I had an mri and consultation and behold, no new lesions or activity, Whilst this is great news and I’m thankful, my symptoms are gradually getting worse and my brain has a clean bill of health. So, maybe we can be confusion mates. Cheers to this invasive Imposter we share!


peterfrancis
1 year ago

From what I know and understand my SPMS has hit a wall/stumbling block and is not actively progressing any further…. for the time being at least.

The symptoms I have are sticking around which sucks to say the least and I should not develop new symptoms for the time being at least.


flossie121
2 months ago

So I have two lesions on the brain that have not changed shape, also one on L-5. My dr said since they didn’t change shape in 5 years she doesn’t think it’s MS.. well they kept me in pain managment taking morphine 60’s twice a day and narco 10’s 4 times a day. I decided to ween myself off sept 2017. I’ve done ok a few relapse where my family dr would give me a 30 day supply of pain meds then I would be fine. I recently have a severe relapse and sent to a new neurologist in a new town. He said by my old scans with only having 2 lesions that never changed but having all MS symptoms he is putting me in the category of possible MS. It’s been 7 years I have been struggling.. it is affecting my home life currently with a new boyfriend that has no idea of MS cause I look healthy I guess I just hurt and I’m tired after work.
Has anyone been diagnosed with a few lesions? I’m so confused.


jay64
2 months ago

well, im defenatly confused as last year i went see my nuorolagist at burton and had scan ect. then i was told on checking my spine i had got a litle worse, when i asked about my brain as previously i had a couple of grey patches they said they could not tell as previouse info was lost and they had nothing to compare against.


rmdaniels
2 months ago

@grandma @stumbler @highlander @dominics
Isn’t it correct that MS can continue to be active even if new lesions aren’t showing up on MRI? Do you know of any medical details/documentation about this? I would love to read more about how this works, but I’ve not been able to find info.


stumbler
2 months ago

@rmdaniels , there’s an article regarding MRIs in MS here :-

http://www.msdiscovery.org/news/news_synthesis/322-more-meets-eye


rmdaniels
2 months ago

@stumbler
Thank you @stumbler for the article link! Exactly what I was looking for! The Beast in the Background. 😒


sarah_irwin
2 months ago

Ive just been recently diagnosed with spms. My neurologist explained that i had no new lesions or activity in these lesions. What was happening now was shrinkage (atrophy) causing the deterioration in my condition. This atropy is in the areas of previous damage.


smack
2 months ago

I had an MRI of spine last fall that showed lesions . I had one of head that showed no changes from 2005. Doc ordered spine and there they were. Trust your body. Hope you are taking something otherwise The MS will creep along.


dominics
2 months ago

I am not a medic. It seems that the view these days is that MS smoulder away regardless of visible activity on MRI.

The is one particular video from the MS Reporters in which a female Indian brain specialist whose name begins with an G or an N (from Barts I think) talking about this very topic.

Though I displayed no visible MRI change I successfully made the argument to my neuro regarding my switch to Ocrelizumab. I said that I was the best reporter of change in me and that as MRI was not a full and final record of change, then it was unreasonable to base decisions on that alone. Let alone deny me access to treatment.

I soft-soap it all and don’t get up in their grill. Often parsing it as a question to which I already know the answer. Makes it easier for them to feel like they are deciding and not being whinged at.

Have you searched for papers on Google Scholar? I am not certain of your level of experience regarding interpreting clinical papers (they are pretty unfathomable to start with. I deal with this kind of thing daily so it becomes easier w experience).

In short: MRI is just a component of a variety of measurements and assement tools for MS.

People can discuss MRI results and changes as if it was the only thing that counts. It is far from that. It is merely part of a greater picture.

Join Shift.ms to reply to this post.

Become part of the community so you can chat, compare and learn from other MSers.