I live in a small city in New Zealand and have been RRMS diagnosed for 3 months. I woke blind in one eye in May this year, and in June lost everything below the waist. My MRI in June showed 6 lesions between C6/7 and T8. I also have a longstanding diagnosis of the connective tissue disorder Ehlers-Danlos Syndrome.
In the last 6 months, I have been experiencing variable degrees and variable placement of angry skin.
At its worst, it was all of both legs, lasted 24/7 for 7 days and felt like a cheesegrater had been used to attack my skin.
It roams around my legs although I am yet to get a break regarding my feet which currently are swelling, going purple and thoroughly dislike being used.
I have been on Gabapentin for a while, and have just upped the dosage to 400mg 4x/day and this has helped considerably – reducing the patches to just my feet and where my weight is resting.
Does anyone have any idea what this is, and the usual treatment pathway?
I am also wondering what an MS attack feels like. I am experiencing an unusual cycle of events repeatedly and am wondering if this is a new attack each cycle, or whether it is just normal with MS.
The cycle starts with 3 days dizziness +/- poor sleep. Next is up to a week of much worse skin pain (cheesegrater), followed by full-body floppiness where I have difficulty holding up my head, let alone moving from bed to chair. Is this an attack?
Thank you in advance for any replies.
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