Hi! I’m a 44 year old female that has been having symptoms for last 6 years. I’m A Veteran so all my care is through the VA. I would go to my Dr with an issue, and he would send me to a specialist for that particular symptom. This has been happening for last 6 years. I got so frustrated that no one would look at ALL my symptoms as a whole. I kept telling them SOMETHING isn’t right. Then, with all the chronic pain, they started treating me for Fibromylagia. Those meds are not helping. 6 months ago I started getting muscle twitches all over my body. At first, would only be when I woke up and laying in bed. I thought maybe a sign I slept too much. But then twitching started all the time through out the day. I hate it! When I’m active, I don’t notice it, but when I’m relaxed it feels like aliens are controlling my body! While typing this, legs and arms are jumping like crazy! I told my Dr and he did some sort of routine blood work and said all looked good. He Was going to leave it at that. That was my breaking point and told them I wanted to see a specialist to figure out all the symptoms! No way this is normal! Finally got an apt with neurologist. I had to wait 3 months but saw him 2 days ago and went in loaded with this list of issues:
Blurry vision episodes
Pain behind right eye
Sensitive to smells/light
Can’t hold bladder
Chronic pain everywhere
Numbness in toes, fingers and tounge
Twitching all over!!!!?
Knee problems (Surgery is April 1st on first knee)
Finally someone listened more. I had an MRI a few years back. It showed some small lesions then but nothing they seemed to be concerned about. Now I wonder if that was a sign there! The Dr is switching some of current meds around and first time I heard of possibly having MS seriously. He said I could have a spinal tap to find out for sure or wait to see if new meds would help. I knew nothing about MS so said maybe just wait. (I have a follow up in June) But after returning home and reading about MS… Its me to a T! I called and told nurse that I DO want a spinal tap now. I know some of my issues probably aren’t related to MS…. But most are. I’ve been on Tylenol 3 daily for last 6 years. (8 pills a day) for chronic pain. It don’t really help at all. I can at least get out of bed when I take it. I’ve been searching for months what could cause the muscle twitches all over. Now I see that is a symptom of MS also.
Would love to know what I should or could ask my Dr to make sure I’m asking right things to find out for sure. Thanks for reading my ramble! Oh, and does anyone else have a real sensitivity to smells? I can’t wear perfume and can’t be around others that do!
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