Last reply 2 months ago
New treatment?

Morning All,
I’m now on day 4 of tecfidera and apart from a few hot flushes on the first day everything has been fine so far 🙂

I saw my neurologist yesterday as I’m currently having another relapse (which began before I started the treatment) and they’ve given me a hefty dose of steroids to see me through.

However, the neurologist did say that they would try the tecfidera for 6 months and if it wasn’t successful there was a new treatment that NICE had approved only this week which involved a 5 day drip every 6 months. He didn’t go into any more detail about this but just wondered if this was something that anyone else knew about?

Thanks!

Danni

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dvtrv
2 months ago

It sounds like that could be Ocrevus.

I did a bit of research on it as am needing to come off Tysabri after 7 years.
Ocrevus was one of the two out of the 4 I was considering.

https://multiplesclerosisnewstoday.com/forums/forums/topic/im-about-to-start-ocrevus/

I was under the impression it is around a 4-5 hour infusion every six months.

Little side affects.

My other consideration is Mavenclad.

Do your research and good luck.


dvtrv
2 months ago

Apologies, I failed to say ‘Allo ‘Allo


dannibrett
2 months ago

Thanks for the info, will have a look in to it. I’m hoping I don’t get to this point and the tecfidera is successful but it’s always good to know there is another option 🙂


stumbler
2 months ago

@dannibrett , Yes, Ocrevus (Ocrelizumab) is the latest drug on offer. It was a bit remiss of the Neuro not to mention it by name……….

There’s some more details here :-

https://www.mstrust.org.uk/a-z/ocrelizumab-ocrevus


dannibrett
2 months ago

Thanks to you both. I’ve had a look, Sri appears to be in very early stages?
I think he avoided naming it as my Tec has only just started and he was keen for me to give it a good go.
Anything that can reduce the severity of relapses like my current one is welcomed!


dannibrett
2 months ago

Sri? *it !!!


stumbler
2 months ago

@dannibrett , Ocrevus may have just been approved in the UK, but it’s been available in America for sometime. And, would have been involved in clinical trial for a number of years.

Nothing is that fresh off the production line………….


dannibrett
2 months ago

Thanks @stumbler 🙂

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