Last reply 2 months ago
Needing advise on pain

Hi I got diagnosed wi rr ms in April this yr. I was wondering if anyone else gets pain all on the same side as in head arm and leg. I am on 600 mg gabapentin 3 times a day but doesn’t do much.

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mlgilber1
3 months ago

Hey! I get pain everywhere, but it is more concentrated on my right side. I know a lot of people here will experience things only on one side of their body. I take 900mg of gabapentin 3 times a day and it doesn’t do much. My ms specialist added in amitriptyline which helps a bit more, but we are working on switching the gabapentin to something else. She prescribed cymbalta, but then I realized it has an interacting with something I take for anxiety. I would definitely give your doctor a call if it’s not helping so they can try something else. Best wishes!


stumbler
3 months ago

@sarahlb, contact your MS Nurse to discuss your pain. Then they can determine whether the pain medication should be reviewed or whether a Neuro-physio assessment would be more appropriate.


sarahlb
3 months ago

Hi thanks for the comments. I have booked an app with the ms nurse to see what he thinks.


niteowl
3 months ago

Am on gabapentin as well 600mg 3 times a day and the pain in my hips and legs drives me crazy …… it used to be mainly night time but now it’s all day as well try to take my last dose as late as possible if not it keeps me awake along with the burning feeling in my legs, I hope you get something that will help more Xx


stumbler
3 months ago

@niteowl , have a word with your MS Nurse and see if they can arrange a Neuro-physio assessment for you.

I fear that some of your pain may be down to poor posture/gait, caused by automatically compensating for an MS weakness. Gabapentin would probably not help if this is physical pain.


niteowl
3 months ago

Thank you am due to see neuro next mon will see what she says then and take it there the constant pain and fatigue is hard going and it’s getting to me x


sarahlb
2 months ago

Hi thanks for the reply. It’s good to know someone else hips are soar mine are in agony this week. I’m on 600mg of gabapentin three times a day to. It helps a bit with all my other leg arm back pain but not hip. I was so worried about it till u have said u have hip pain. Iv got ms nuts 7th Sep so I’ll see him then about it.

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