I’m aware I ramble on and on and……..
Can I please, please apologise for not responding to anyone I should have had on here.
Since my diagnosis in 2011 I’ve gotten married, lost a child at stillbirth @ 37 weeks and after 7 years of trying, through IVF, have a beautiful 19 month old boy.
Hectic? Yeah do you reckon.
I’ve been on Tysabri since March 2011 and it’s great.
Last relapse was December 2010.
I work, coz once a workaholic, always……
Although only 2 hours a day Mon-Fri
For those who’ll understand the terminology here, they can not detect, in my case with being JC virus since 2014 or 5 and treatment blah, PML via an MRI scan.
Subsequently, upon trustworthy recommendation, I’m having to change my treatment.
This involves another lumbar puncture, :'(
Has anyone had to change meds for similar reasons?
I’m a little worried, not a worrier by any means normally, because Tysabri has been good to me and as mad as it sounds, I’ll miss that potential deadly drug.
Look forward to hearing from anyone, doesn’t have to be directly related.
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