Last reply 1 year ago
My first round (Lemtrada)

Hi everyone, i have 20yo. I finished my first round yesterday. No side effects during the infusion. Now i feel tired and heavy and i have pain in the arms, shoulders and legs. Someone has already tried this effect?

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vasy
1 year ago

Hi. It’s pretty normal to feel tired after lemtrada, this will resolve in few weeks


shandao
1 year ago

Hello. I also recently had my first round of lemtrada, and also have definitely noticed an increase in fatigue. I have not had new pain in my arms and legs. I would suggest mentioning it to your dr, though as I said, I’m a lem newby, too. I hope you start feeling better!


nattied13
1 year ago

I had my 1st round of lemtrada in January 2017. Overall it went pretty well. I did have some chest pain and shortness of breath on occasion and I developed oral candida! I have felt exhausted and my arms and legs feel heavy with pain too.

I will be getting my first set of labs next week!
I am back working- wearing a mask, I am a pediatric primary care provider. I have been seeing lots of flu and respiratory illnesses the past week and half. Does anyone else work in healthcare?


badphobia96
1 year ago

The pains are gone, they return sometime but are mild 🙂 now my worst symptom is a feeling of heavy and oppressed chest, including the shoulders. I had this symptoms before treatment, but now are a little more stong, all says “anxiety”, i’m very anxious at this time ahahahah I hope it’s nothing :))


stumbler
1 year ago

@badphobia96 , you might find something here to help with anxiety :-

https://www.mstrust.org.uk/a-z/anxiety

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