Ms is very new to me. I visited my GP in October, after loosing sensation in my body from my coller bone down. I had various urgent referrals made for various tests. I had an mri in November 2017 and given the diagnosis of MS by a neurologist as the mri showed small lesions in brain and a large one in my spine. I was told at diagnosis that I’d be referred to the hospital Ms team, given steroids and dmds. I was given iv steroids in December to reduce the inflammation in my spine. I then had to wait until March to have a lumbar puncture to confirm the diagnosis. Dmds were not offered until they had my LP results back. I didn’t want the LP but was told that without it I wouldn’t meet the criteria for Dmds as its not considered a full diagnosis.
Im now at a stage finally to receive dmds but I’m now being told that I don’t meet the nice guidelines for many drugs as this is possibly my first attack…. Now I may be wrong but I thought that the sooner you received treatment the better? I am also sure that this is not my first attack. I briefly lost my sight when I was 21 whilst suffering extreme migraine. This passed over the course of around a week, but for around a year I would have weekly migraines and loose areas of sight.
My MS team have said that they will take this into consideration along with the tests for carpol tunnel to determine the bizarre sensations in my arms a few years ago… The GP receptionist told me my tests were normal so I did not need to see the GP…. I just assumed that the sensations must be normal so ignored them as bast as I could.
Its now may. My current attack happened on October 1st and I’m still not back to how I was before and I still have not received any dmds. Is it normal for treatment to be so delayed and how does my diagnosis journey compare to your diagnosis journey?
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