Last reply 1 year ago
MS symptoms but clear MRIs

What gives? All of my symptoms are MS symptoms but my brain and Cervical MRIs were clear?! This along with my doctor thinking since my symptoms are progressing makes him think I don’t have MS. He says he thinks my symptoms are progressive and not “flares”. Whenever a cool/cold front moves through my symptoms are worse. I am going to a movement disorder neurologist today since he referred me. In the last 5 months I have had 3 MrIs, a CT scan, an endoscopy with biopsy an EEMG and too many blood tests to count but still no diagnosis. I am getting very frustrated,

Add categories

Browse categories and add by clicking on them

You can remove current categories below by clicking the ‘x’.


stumbler
1 year ago

Hi @sliqueschic and welcome.

MS can be a difficult condition to diagnose, with Primary Progressive MS (PPMS) being even more difficult. Getting a diagnosis can be frustrating, as the symptoms experienced also present in various other conditions.

The following link goes into PPMS in some detail, so that you can see the problems associated with diagnosing this condition :-

http://support.mstrust.org.uk/file/primary-progressive-MS.pdf

This may help in your ongoing discussions with your medical team.

Have you had the Lumber Puncture, to analyse your CerebroSpinal Fluid (CSF)?

Join Shift.ms to reply to this post.

Become part of the community so you can chat, compare and learn from other MSers.