Last reply 3 days ago
Ms relasping remitting

I was diagnosed with MS 2 years ago when I was 56 in 2016. I saw a neurologist once! Apparently he can’t see me as he is only seeing “The newbies” We only have one neurologist in Plymouth! My MS nurse is really not much help as she hasn’t helped me much at all! I went on Steroids for my first relapse which helped me tremendously but the second relapse is worse than the first. I can’t walk very well as it hurts my legs to try. Going out I have to use a wheelchair. I just hate it to be this bad. I wake up every morning thinking I will be able to walk (As I am a positive thinking person) I am never pessimist. my words get all mixed up as well when talking at a normal speed so I have to be very conscious of what I am saying and speak slower

Ann Findlay

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stumbler
4 days ago

Hi @ann_findlay and welcome.

You’re not getting much of a service from your local services. Surely if you’ve been recently diagnosed then you’re hardly a newbie. And, you’re too young to be discounted like this.

What does your GP suggest about this situation?

Also, who prescribed the first course of Steroids and how long ago was this? Steroids are used to bring a life-impacting relapse to a faster conclusion, although they wouldn’t impact the overall recovery outcome.

You just have to retain your sense of optimism. Try and stay as active as you can. It very much is a case of “use it or lose it”, although don’t cause yourself pain or discomfort.


cameron
3 days ago

MS is a condition that is best helped with multi-disciplinary services e.g. GP, physio, specialist clinics (e.g. continence, speech and language) as well as a neurology team. It sounds as though you are being grossly short-changed. As @stumbler says, what is the GP doing? Mobility, for example – have you been assessed by a neurophysiotherapist? Until you are, how can you know what to do to improve? Are you on DMD treatment? (And if not, is this your choice or have you not been given all the options?). Like you, I was diagnosed in my early fifties. I am now 68 and can honestly say I am better now than in 2003….. but only because I have received the correct help. Remember that under the NHS you have the right to be treated anywhere in England. In your situation, I would seriously consider changing teams. At the very least, you need a conversation with your GP.


scottevans
3 days ago

Good old government with cuts etc stop paying a queens ransom in wages for the useless people in parliament and invest it in our health service so all can have the care
they deserve.

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