My mother in law is supposed to be getting ready to start Lemtrada and can’t seem to get anywhere with the MS One to one nurses. Has anyone else had this problem? She has done everything on her end and her drs end, the nurse called her at 5 pm on a Friday and was very rude, short and wouldn’t give much information. My mother in law asked to call her back Monday morning for more information to which she answered “I’ll call you back.” That was first week of January and she has yet to hear back. They’re supposed to be finding basic information to which they keep giving the run around, they won’t give dates or anything. I found a clinic phone number and called and we have gotten more answers from them than the MS One to one nurses, yet we still have to go through them to set it all up. We have been at a stand still and can’t get anywhere because they’re so terrible.. anyone else have this experience? Any advice for getting the ball rolling?
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