Last reply 2 weeks ago
MS misdiagnosis

A fun story from the hospital, I went there to do some blood work and witnessed a conversation of a guy with a neurologist and later talked to him.

So, the guy was diagnosed with MS for 7 years, taking Tecfidera. It turned out, that he had a condition that prevented him from absorbing some vitamins (I don’t remember the name, persistent anemia, or something like that). Despite no spine lesions, stable head MRI with couple of small inactive lesions, no bands in the CSF he was comfortably diagnosed with MS by the neurologist. The guy was both relieved and extremely angry, which is understandable, but it prompted me to think of misdiagnosis of MS, how common it is? Why does it happen? Im not talking about myself, my case seems to be clear cut (based on MRI changes and LP), but — in general — I thought that the neuros diagnose you with MS only when they are certain that this is a correct diagnosis (it happened in my case, at least, and most of the people I’ve talked with). Any comments?

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dominics
2 weeks ago

That is odd. A diagnosis of MS is a multi-faceted thing. Lumbar puncture, MRI(s), and a clinical history at a minimum.

If that were me I would go from the hospital straight to a nasty-ass medical negligence lawyer. If there was merit in the case they’d be on it in a flash.

Mistakes are made. Some medics are better than others. If you are genuinely hurt by the system then that is what the lawyer is for.


dominics
2 weeks ago

PS: the person can’t have been taking Tec for that long. It has only been licensed for the last 2 or so years.


gijs
2 weeks ago

I have no idea how long was he taking it, all I know, when we were talking he was on it.


dominics
2 weeks ago

That would be a hell of a shock to process that info. Poor chap.


stumbler
2 weeks ago

@gijs , Pernicious Anaemia is probably the condition.

It is unwise to make assumptions about historical situations, without knowing the full facts. I’d be more concerned about you hearing all of this. Whatever happened to patient confidentiality?


dominics
2 weeks ago

I understood that the patient was speaking to the OP. Is that correct? This was in the Netherlands, no?


stumbler
2 weeks ago

@dominics , I read it that the conversation was overheard. I may have it wrong. 😕

OP is in Denmark, in the Amsterdam region of Copenhagen – I think…….


gijs
2 weeks ago

Yup, Ive overheard a snippet of a conversation while the guy was leaving his neuro’s office, ive talked with him personally later.

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