frankoz 27/02/18
Last reply 4 months ago
MS

Some things that may help. I know the diagnosis can be devastating but there is life beyond diagnosis.
A person I met with RRMS was very down and had filled their life with failures all day. So I talked them through their day and identified all their little achievments and successes, standing up without assistance, walking a few steps without assistance, etc, their world was full of successes and they now feel a lot more positive. Even when they walk and they stumble, if they fall that is a failure, but if they react and stay upright that is a huge success, recognise it and congratulate your self.
If you find yourself with “able” people and they are being dismissive of you because they think they are immortal. Just be aware, 20% of them will become disabled in their lifetime, 20% of them will become clinically depressed ,some of them maybe taking antidepressants already, then you add the number who will get diabetes, high blood pressure, etc. They are not as immortal as they think.
I recently told my neurologist that I have the opinion that my body has MS not me, this was confirmed recently when I spoke to someone with severe palsy, they agreed that “they” were normal inside and the inability to control their body due to the palsy was terribly frustrating. So approach the MS as a separate issue or problem your body has and do what you can to cope with it with help from anyone who offers it. You are not alone!
Lecture over.

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