Some of you have been thoroughly great to speak with
On the site so thank you for all your kind caring information .
Unfortunately there are two many closed books on this site that don’t appear to want to give out there information .
I presume this site is to share stories and experiences we have all had with the disease and also to share
What works for you ?
Holistic treatment that you feel benefits
New and up coming treatments etc.
General discussions on the illness .
I’m quite an open person and I realise that ms symptoms can be strange uncomfortable and nothing that a person without could ever imagine what we live with .
I do wonder that people keep a lot of the illness to themselves in fear of being ridiculed . Like I have on many of my posts . I’m not bothered to be honest .
I’m kind I have a caring nature . I found some quite the opposite .
This site is not for being unkind or unreasonable .
This site is for sharing your experience.
I think as we all know the disease is bad enough without getting highly negative comments from others.
I also understand the nature of our disease and it can make people think react differently as well so there will be many people on here living a thoroughly miserable life but please just think we are all going through it .
So please unite together instead of against .
Everyone is looking for answers .
Love to you all 🙂
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