Today i met my M.S. nurse for the first time – cant even begin to describe how much better i feel after meeting her. She really understands this disease and answered all my questions and explained my scans and spoke at length about the treatment i am due to start in october (Lemtrada). What i found most interesting was she told me that most people have M.S at least 5 years before a diagnosis and we went over my health over last 10 years and realised i had symptoms of M.S. going back at least that far. I was actually diagnosed with M.E 12 years ago and was quite bad for about 6 years then improved for a few years before i had a bad bout of vertigo last year which led to my first mri scan and a diagnosis in may this year. I realised then that i have probably had M.S. for 12 years – bit of a shocker really.
She also discussed my pain and fatigue with me and is contacting my doctor to arrange medication for me to start – it was so lovely to speak to somebody with such knowledge and im so pleased that now i feel i have somebody that i can contact who will understand what im trying to explain. Over all a good day x x
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